What is going on? A few weeks ago Steph had mentioned that she had a noticeable increase in her resting heart rate. We compared Apple Watch numbers and didn’t think too much of it at the time. This however continued along with feeling a general lack of energy. Her
"I'm a little nervous this morning", Steph said on our commute into Seattle yesterday morning. "That's understandable" I laughed. Yesterday marked the 160th day of the battle with acute lymphoblastic leukimia. That counter was reset to zero or "Day Zero" as it is refered to by the blood marrow transplant
One of Julie's school projects this last year was to author, illustrate, and publish her first book. Me and My Guinea Pigs is the culmination of her efforts! She first authored her story and then illustrated each page using Procreate, her Apple Pencil, and her iPad. She then combined her
What a road it has been! Tomorrow is the big transplant day!! I am so thankful to be getting my stem cell transplant, and celebrate my new birthday, as they keep calling it at the clinic. I’m thankful for all the help and support to get us this far,
As of yesterday, we have started the condition phase of treatment in preperation for the blood marrow transplant next week. Steph was eligable to participate in a clinical study that replaces traditional high level doses of total body irradiation with an infusion of radiated moniclodal antibodies. This is designed to
While the blog has been quiet, we have been busy. Our visits to Fred Hutch Cancer Center (FHCC) (Seattle Cancer Care Alliance's new name) has become a daily occurrence the last few weeks. Many tests have been performed and many specialists have been seen and we had our big "Data
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