Blog
One Long Week
On Monday, the kids, my mom, and I decided to take road trip to Boise. The kids have enjoyed time with cousins and family. We have been keeping busy and enjoying these long days the best that we can. Last night was the first night in a hotel room with
The Trail Ahead
The kids and I went to REI yesterday to get new hiking boots. Today we put them to use on the Coal Creek Falls trail. It was great to get outside on this beautiful day for some fresh air and exersice. The falls were dry, so that added to some
Bittersweet Homecoming
Stephanie is cancer free in the arms of her Savior, Jesus. He welcomed her home at 12:11 this afternoon. I was able to be with her, holding her sweet hand when she sighed the weight of this world away. We will miss her terribly, but remember her always. Steph
Uphill Battle
Steph's liver numbers continue to climb in the wrong direction. The toxins building up in her blood (ammonia) are impacting her cognative ability. Yesterday she was able to answer all the questions - albeit a bit slow. Today she was answering all questions with her birthday or "same". To her
There and Back Again
After a couple weeks at home, we are back at UWMC. Steph's liver and kidney numbers have been on the rise again and they have decided to admit us today to keep a closer eye on her. The toxin buildup from the liver injury is causing some mild cognitive impairment;
Day 33: Home Sweet Home
After 2o days in the hospital, Steph was discharged yesterday, September 4th. This also happened to be the day that my cousins Ray and Kristi where back in town from thier anniversary Alaskan cruise. We were able to swing by my aunt and uncle's home straight from the hospital to
Day 31: 100% Donor
One of the recent blood count tests was to count the CD3, CD33, and CD56 natural killer cells and see what percentage were existing and what percentage are newly created by the transplanted stem cells. The results are in and 100% of these key cells are from the new stem
Day 26: Long Days
Today marks 26 days since transplant and 14 days at the hospital. Progress has been slow, but steady. The liver numbers have been slowly improving each day. There was discussion around Stephanie having sinusoidal obstruction syndrome (SOS) which is a complication that can occure post transplant. It is some liver
Day 19: Beware of Rockslides
Today marks one week since being admited to UWMC for a neutropenic fever. While that sent us here, Steph has actually not had a fever since being admited. She did however experience an increasing shortness of breath sensation that led to an investigation to find that there was some fluid
Day 14 Update
We got to hit pause on out daily clinic visists yesterday as Steph hit the magic 100.4 degree temp Monday night that dictated admittance to UWMC. The good news is that the temp didn't last long (just long enough though) and she will most likely be cleared for discharge
