Newsletter
Conditioning
As of yesterday, we have started the condition phase of treatment in preperation for the blood marrow transplant next week. Steph was eligable to participate in a clinical study that replaces traditional high level doses of total body irradiation with an infusion of radiated moniclodal antibodies. This is designed to
Battle Preparations
While the blog has been quiet, we have been busy. Our visits to Fred Hutch Cancer Center (FHCC) (Seattle Cancer Care Alliance's new name) has become a daily occurrence the last few weeks. Many tests have been performed and many specialists have been seen and we had our
Battle Fatigue and Renewal
Today marks day 129 of the battle against leukemia (aside: Russia invaded Ukraine the same day that our battle began). Our last update signaled the start of a new attack plan that was to last about a month. That was an outpatient chemo plan, but it hit Steph's
June Updates
It has been a minute since our last update. The good news is that things are progressing along as scheduled and we have been doing well over all. Treatment Updates We had out busiest clinic week to date as we are currently on day five in a row of visits.
Restless Farewell - One Year
It has been one year since my dad passed away. That is both hard to believe as the greif still feels so fresh, but also feels like so long ago due to the challenges of the last year. Not a day goes by that I don't think of
The Battle Continues
Steph had her third bone marrow biopsy on Tuesday and we had our results review meeting with our oncologist on Friday. The good news was that the levels of leukemia were much lower - now just 0.36% - a number that constitutes "old school remission". The discouraging
Flying Fun
This Tuesday we were able to take a break from the routine for an adventure at iFly Seattle. My mom has said that she would often fly in her dreams and I think that dream practice paid off as she was a "natural" and impressed our instructor. A
Treatment Update - Transplant Path
It has been a while since we have posted any treatment updates and that is thankfully because treatment this cycle (2B) has been pretty uneventful. Steph has had two lumbar puncture chemo treatements this cycle (one at UWMC and one at SCCA). Both went well. The primary side effect this
Hurry Up and Wait...
It’s been an oddly normal week in our house. I’ve felt pretty normal, which is nice! We’ve been living the regular rhythms of life, as we wait for the next cycle of chemo to begin. We’ve been enjoying family time of playing games, going to get
Feeling the Love
So many of you have been praying, bringing meals, dropping off care packages, and sending things in the mail. I may only see you on my doorbell camera, on video chat, or reading your notes, but want you to know I feel all the love and support! I look forward
